We are back, the roads were so bad yesterday that we had to stay an extra day....but thats OK because the MRI looked good!!! I am so happy! Alyvia is still going to have to have an MRI every few months to make sure the tumor isn't growing back, but the longer she can go without it coming back then the better her chances are that it won't come back.
I was really nervous with Livie being put under by general anesthesia, but she did really well....she didn't stop breathing....the whole day, yippie! (they placed the IV and took her blood when she was under....so that was really nice.) We also got to see some of our old nurses and techs from the NTU. We don't really miss the hospital, but we do miss the awesome nurses and techs we had, including the ones we didn't get to see yesterday. So here's a shout out to all our old nurses and techs.....WE MISS YOU GUYS!!
Alyvia had a pretty good trip to the hospital (I hear those are pretty rare) so that was really nice. We also got to stay with "Granny Goose," Livie's great Grandma and we had a really good time. Thanks Grandma!!
On a sadder note, when we were at the hospital I ran into a family I had met in the PICU. Their little boy was almost 2 and they found out he had a brain tumor....his was cancerous. Those kind of tumors are called "cancer of the soul" because the cancer spreads and it spreads with a vengeance. Their little boy, Carson, had gone through 4 rounds of chemo and his little body just couldn't go through anymore. When I saw his mom on Monday she said that the cancer had spread so much that there was nothing more they could do for her little son.....the cancer is killing him.
I can't help but think we could be in a similar situation with Alyvia. I don't understand why these things happen. Life really is a gift and we just have to enjoy each day we have. My heart goes out to Carson and his family.
The Birthday Boy!
4 months ago