She found this hat in her diaper bag and thought it was pretty cool!
Getting a love
Alyvia hasn't had anymore big breathing issues, yay! The doctor also thinks that Livie was having a seizure when she stopped breathing the other night. She came home on a seizure medication and we made sure that she is gettting enough of it in her system. She has had a few small breathing episodes, but I didn't even have to use the bag and mask on her, she recovered pretty fast. At night time her SAT's have been staying up and she stays oxygenized, so that's good.
She is starting to walk really well now, her physical therapist is only coming once a month now. He was quite impressed with the progress she has made. (OT is down to once a week now.)
I still can't get over how well Alyvia is doing. She is just so happy now. I knew she was sick before all this happened, but even I didn't realize how sick she really was. I imagine she must have felt pretty crappy. Looking back at pictures she was soooo skinny and her eyes just looked sad. Seriously, I remember looking at her a few times and thinking how sad she looked, her smile didn't reach her eyes.
Now though, she is just so happy, she even wakes up happy (and she is not a morning person!) And through this all Alyvia hasn't thrown up one time! She has a healthy appetite now and she is most definately not underweight anymore! haha We've had a great past few days.
Also one of our PICU buddies, Kaidence, finally got to go home. She got her long awaited new heart and is doing well enough to go home! We are so happy for her and her family! After being in the PICU it's so good to see people make it home.
*pre brain surgery*
As Livie got sicker, she got so skinny! She threw up so so much. Even through the night she always threw up at least 3 times. It was all related to the tumor, she hasn't thrown up once since the tumor was removed.....*post brain surgery
Now...Livie has beefed up a litte...okay so maybe a lot! ;)
5 comments:
It sounds like things are going so well for you, despite the few bumps in the road. The most important thing is that you have her and she is happier than before! She is so cute!
Megan you are such a Great Mom! Always so optimistic and having the cutest things to say. Alyvia is so lucky to have a mom as Awesome as you!!
We are so happy to hear that she is doing so well. I love your blog, I look at it daily. We have been praying so hard for you and Livie. What a miracle!! Love, The Vigils
I love to stalk your blog. Its so fun to see Livie progress and get better. She is such a cute little doll. You always have her dressed so cute, and her hair is always perfect - your an amazing mom. I admire how positive you have stayed through all the struggles you are faced with. You're such an example to me! Thanks Megan!
It is so good to hear that Alyvia is doing so well. You are an awesome mom and this is going to make your whole family stronger as a whole. Hooray for good news.
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