Jan 16, 2008

Update

We spent all day at Primary's yesterday, but we are home now. I was a little worried that they would admit Livie....and I really don't think she would handle it well. She definitely remembered the hospital and was not liking it one bit. (She started screaming as soon as we walked in)
Alyvia saw her neurosurgeon after she had a CT, (during which she passed out) but her CT looks great! I am so glad. They thought that maybe Livie had hydrocephalus again,(fluid on the brain) but she doesn't, so that was a relief. I am so thankful that her brain looks good.
Then she saw a neurologist, and he didn't really know what to think about her breathing episodes. He ruled out "mad spells" (where kids just get so mad they actually hold their breath until they pass out,) I guess it's pretty common.
Where Alyvia does this all the time, even when she is sleeping, and she doesn't scream or give any warning that she's going to do it, she just gets this look on her face and then she turns blue and then she passes out, it's just bizarre. She is doing it at least 3 times a day now, and then last night she did it twice. She could possibly be seizing, since seizures come in so many different forms, but it wouldn't be a typical seizure....but then again nothing about Alyvia is typical. For now her seizure meds are being upped to see if that'll help.

Then Alyvia was supposed to have lab work done, it didn't go over so well...It was a 30 minute process...they poked Livie a few times (as she's strapped down to a bed with an oxygen mask being forced on her face) and they kept poking her, in the end they couldn't even get any blood, her veins are still too shot. It'll be a wonder if the girl doesn't need psychotherapy after all of this! haha!
We are going back down to Primary's in 2 weeks for more check up's....So for now we are just glad to be home and thankful that her CT looked so good.

4 comments:

Kaidence's Mommy said...

I am so glad that things look ok. I have thought about you guys a lot. Good Luck and we will keep in touch.

With Hope and Love,
Kaidence's Mommy
Shauntelle

Jenn said...

A one day trip to Primary's-- that's unusual and so great. I am glad you got a short trip. I feel so bad about the labs, poor girl. Emily still has a Christmas surprise for lyvie lyvie. We wil be driving through Blackfoot tomorrow. Maybe we could leave it at your doorstep- I'll call you for directions tomorrow. Have a great night.
the Pearson's

The Turnarounds said...

That's so good that she didn't need to be admitted again. I could hear you sigh relief as I was reading. ;) Poor little girl having so much blood work done. You are still in our prayers.

Anne Pearson Photography said...

Oh man....what an ordeal! I'm so sorry about the stressful, very "un-fun" day! I'm glad her CT scan looked good though. Good luck these next few weeks. Anne