Seizures?

Alyvia has continued to do great, her agitation is getting better and so is her walking. She is walking all over now. She only has physical therapy and occupational therapy once a week now. She has made a lot of progress and is so much like the "old" Livie, it's unbelievable. She still has her cute sense of humor and cracks us up everyday. It's so great to see her acting so normal. I felt like things were almost too good to be true....

Last night Alyvia was asleep in bed with us when she woke up gasping for air trying to breathe. I was awake and tried to calm her down, but she was turning blue so I immediately got ready to "bag" her with the bag and mask we have here at home. She was so stiff and jerky, her teeth were clenched down so tight we had a hard time bagging her, meanwhile she is still not breathing and turned this unreal purple-blue color and we kept trying to bag her. She still wasn't breathing so I had to call 911 and Hutch had to pry her mouth open and give her mouth-to-mouth. After what seemed like forever, Livie finally took a breath.

She has done this "breathing episode" a couple of times since we've been home from the hospital, I am familiar with using the bag and mask on her, but last night it wasn't working. She has never stopped breathing in the middle of the night before...I have never had to call 911 before...I've always been able to get her to take a breath. It was horrible, as a mother seeing your child like that.
After the paramedics came and assessed Alyvia we decided she was doing alright and if she did it again to take her to the ER. They thought she was seizing, she had all the classic symptoms for it. After everything calmed down we went back to bed, 5 minutes later Livie was blue again! (She was at least breathing on her own, just not very well.) Needless to say last night was not a good night.

Today Alyvia is doing better, her coloring finally looks better, she was gray all morning. Her heart rate has been high, but her oxygen looks good. (She was on oxygen all night last night because she couldn't keep her SATs up, she was really struggling last night) We were up all night watching Livie, making sure she took a breath. We still aren't sure why she just stopped breathing in the middle of the night with no warning. She has never had a "breathing episode" as terrifying as last nights. I don't know if it was a seizure or not. I do know that Livie likes to keep all of us on our toes....

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