Update

Alyvia had a pretty bad night, she's been really sick, she had a really high temp that we can't get down, her heart rate is way too fast (she keeps setting off the alarms) and her lumbar drain leaked all night. They had to take the lumbar drain out this morning because when it is leaking spinal fluid out then you know germs can get in. Which right now is our main concern, because of the high fever the doctors think Alyvia has an infection and the most likely cause of infection would be in her spinal fluid (from having the lumbar drain in.) If her spinal fluid is infected then the infection can go to the brain.....which would be very bad. So now that the lumbar drain is out, we know Livie can't circulate the spinal fluid on her own, so meanwhile its putting pressure on her brain, which needs to be relieved soon, but the nuerosurgeon can NOT operate on Livie with an infection....so I don't now what is going to happen.