Quite a day

Alyvia had an MRI, CAT scan and an ultrasound this morning....the MRI didn't go so well. Livie does not handle sedation very well (since the MRI is at least 45 mins in an enclosed capsule where you aren't supposed to move a muscle....Livie would definitely need sedation!) She was sedated, and like normal, didn't fall asleep, so they gave her as much sedation as they could and started the MRI and then she stopped breathing, (and alomost gave me a heart attack!) so they put her on oxygen, and she was very upset...needless to say she is going to have to have another MRI done, and it'll have to be done with general anesthesia.

According to the CAT scan Alyvia has more fluid in the ventricles in her brain, and on the outside of her brain, (her lumbar drain was clamped all night long to see how she would handle the spinal fluid on her own) and then today her spinal fluid started leaking out of the lumbar drain, which isn't good. Apparently there was too much pressure for her to handle, so I am pretty sure she will be getting a shunt.

The ultrasound couldn't even find the vein where the clot was....so we don't know too much about that. Most likely the clot is still there since it was big, but hopefully now it is smaller.

Livie has had quite a day. The doctors think there must be a lot of pressure in her head from all the fluid because she won't talk much today and she won't eat (which is her new favorite past time) she has a fever and she's been screaming telling me her head hurts. I imagine she must have quite a head ache! So now we are just waiting to talk to the nuerosurgeon to see what the plan is.
The eye exam is on hold for tomorrow since today has been kind of crazy.