Faith

Today was going along great, the doctors had discussed us maybe even going home in a few days if all went well....then Alyvia stopped breathing, she turned BLUE and we couldn't get her to take a breath, it only lasted a minute, but was was still really scary. We gave her oxygen and she still wouldn't breathe, thank goodness we finally got her to take a breath. Its just so surreal when she does this, it is getting worse...and this time she was shaking, so the doctors think that myabe she was seizing. No one really knows why she does this.
When Livie had the sleep study done the EEG showed that she does have the conditions of seizure activity in her brain (which means she has a higher risk of seizing.) The seizure meds were being weaned, but now she will have to go back up on the dosage.
The doctors also think Alyvia's brain is not telling her body to breathe, hopefully as her brain heals this won't be a problem anymore. It just makes me feel really uneasy because Livie randomly does this, and each time it seems to be getting worse. It lasts longer and its harder for her to start breathing again. I am really worried she will do this when she is asleep....(especially since none of her monitors went off when she did this, which also confused the doctors.)
She has made it this far. This is one of those times where I just have to have faith. Through all of this nothing has ever tested my faith so much, but at the same time nothing has ever strengthened my faith so much. I have learned to put all my faith and trust in the Lord, and know that no matter what happens it will be okay. And sometimes that's hard to do. I have no control over these situations, no one does. It is hard to see my little girl go through these things, and sometimes I wonder why, but I know everything happens for a reason. Even if it is making my hair turn grey!
Thank you everyone for all the support and for all the prayers being offered up for sweet little Livie.