Miracles

"There must be a God afer all, because this is really a miracle...." this is quoted from Alyvia's nuerosurgeons after they examined her and realized that she doesn't need a lumbar drain put back in or a shunt put it, which was previously planned.
So yes, there is a God, and yes, miracles really do happen. Alyvia's brain seems to be healing on its own, without any help, which really is a miracle! Right now, she doesn't need a drain or a shunt, which none of the nuerosurgeons understand, she should need help regulating her spinal fluid, these things don't just fix themselves....but that seems to be the case for Alyvia.

Also, yesterday Livie could see, I mean really SEE, I knew her eyes were working because she just kept looking all around in awe, she was so focused and I knew she was really seeing. Unfortunately, she still can't see all the time, it comes and goes, but I have faith that her vision will return. I am just so glad that she can see sometimes, it will come in time. (They said 75% of the time the vision will return, but to give it one year for the brain to heal.)

Livie had a sleep study done and we finally got the results back, she does have sleep apnea. Her brain isn't telling her body to breath, which is why she de-sats (her oxygen drops) when she is relaxed or sleeping. So from now on Livie will have to be on oxygen at night and when she naps. She has been using blow by, but now she will have to sleep with nasal cannula oxygen...I don't know how she is going to like that up her nose!

So far IV team has been able to find veins to poke...so hopefully her veins will last until she is done with antibiotcs, we have 15 days left. Her spinal meningitis culture still isn't growing anything, which is great, she doesn't have any other bacteria growing.

Livie still has C-Diff, she is having a hard time getting rid of it because she is on so many heavy duty antibiotics.
Overall, Alyvia's body is healing and slowly getting better. She has come a long way, and I know she still has a long way to go, but I am so thankful for all the baby steps and big steps she has made. I am so grateful she is here and doing as well as she is doing.